publication venue for
- End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning 2019
- A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning 2018
- Agreement between clinician-rated versus patient-reported outcomes in Huntington disease 2018
- Motor onset and diagnosis in Huntington disease using the diagnostic confidence level 2015