The association of bowel function, participation in life activities, and quality of life in rectal cancer survivors 2022

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD) 2016

HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, speech difficulties, and swallowing difficulties 2016

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system) 2016

Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations [review] 2012