selected publications
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Journal Article
- End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning. Journal of Neurology. 2019
- Agreement between clinician-rated versus patient-reported outcomes in Huntington disease. Journal of Neurology. 2018
- Relationships among apathy, health-related quality of life, and function in Huntington's disease. Journal of Neuropsychiatry and Clinical Neurosciences. 2018
- Reliability and validity of the HD-PRO-TriadTM, a health-related quality of life measure designed to assess the symptom triad of Huntington's disease 2017