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Publications While At HealthPartners

selected publications

Journal Article

Longitudinal change in quality of life in neurological disorders measures over 3 years in patients with early Parkinson's disease. 

Movement Disorders. 2021

End-of-life measures in Huntington disease: HDQLIFE meaning and purpose, concern with death and dying, and end of life planning. 

Journal of Neurology. 2019

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease. 

Journal of Neurology. 2018

Reliability and validity of the HD-PRO-TriadTM, a health-related quality of life measure designed to assess the symptom triad of Huntington's disease

2017

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). 

Quality of Life Research. 2016

HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, speech difficulties, and swallowing difficulties. 

Quality of Life Research. 2016

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system). 

Quality of Life Research. 2016

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J. S. Lai

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