selected publications
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Journal Article
- A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning. Journal of Neurology. 2018
- HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD). Quality of Life Research. 2016
- HDQLIFE: the development of two new computer adaptive tests for use in Huntington disease, speech difficulties, and swallowing difficulties. Quality of Life Research. 2016
- New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system). Quality of Life Research. 2016