HealthPartners complies with the Minnesota rare disease mandate (Minn. Stat. § 62Q.451), ensuring that no health plan company may restrict the choice of a member as to where the member receives services from a licensed health care provider related to the diagnosis, monitoring and treatment of a rare disease or condition. Please note that the requirements of the statute do not apply to most self-insured plans.

Please complete the rare disease intake form to confirm eligibility, application of appropriate benefits, and payments for providers not participating in the enrollee’s plan network for covered services.

"Rare disease or condition" means a disease or condition:

• Affecting fewer than 200,000 persons in the United States and is chronic, serious, life-altering or life-threatening
• Affecting more than 200,000 persons in the United States, and a drug for treatment has been designated as a drug for a rare disease or condition pursuant to United States Code, title 21, section 360bb on the FDA Orphan Drugs List
• Labeled as a rare disease or condition on the Genetic and Rare Diseases Information Center list created by the National Institutes of Health

Or for which a member:

• Has received two or more clinical consultations from a primary care provider or specialty provider that are specific to the presenting complaint
• Has documentation in the member’s medical record of a developmental delay through standardized assessment, developmental regression, failure to thrive or progressive multisystemic involvement
• Had laboratory or clinical testing that failed to provide a definitive diagnosis or resulted in conflicting diagnoses
  

Contact a HealthPartners Nurse Navigator℠ with questions regarding HealthPartners members with a rare disease condition at 844-732-3544 (TTY 711).